(Singapore, 2nd) After graduating from studying abroad, her beloved daughter was diagnosed with ALS and was paralyzed for a year. Her parents were unwilling to let her daughter "stay" in the hospital for the rest of her life. They took her home and cared for her 24 hours for more than eight years of her life.

Since high school, Zeng Huiyi (32 years old) has studied in Canada. After graduating from university, she continued to study for another year to obtain a professional diploma and stayed there to become a social worker.

In 2014, at the age of 24, she felt unwell and then developed into dysphagia, weak voice, and muscle weakness. She lost 15 kilograms within a year and was later diagnosed with amyotrophic lateral sclerosis (commonly known as ALS), an incurable disease.

I am Ooi Lin Kah, a MND (motor Neurone Disease) patient, 63 years old. I was diagnosed in NNI (TTSH) in late 2013. Since early 2017, I had been wheelchair bound, and lost the functions of my two arms and fingers one year earlier. For feedings, I have a PRG tube since Sep 2020. From late 2017, I was on NIV (non-invasive ventilation) round the clock, until I did a percutaneous tracheostomy operation on 29 June 2021 (excellently performed by Dr Chan Yeow).
My MND illness, specifically ALS (Amyotrophic Lateral Sclerosis), is a terminal, progressive neurodegenerative disease, with a prognosis of 2-5 years. I am now into my 9th year with the help of three special artificial life sustaining technologies: (1) PRG feeding tube, (2) Tracheostomy breathing apparatus and (3) the AAC (Augmentative and Alternative Communications) device, ie eye gazing technology.
Among these three, the PRG and Tracheostomy are giving inputs to my physical subsistence but the AAC is giving me the SOUL, the quality of life and the willingness to continue living! … Without AAC, I cannot communicate my physical needs to my caregivers, and more importantly to exchange my gratitude and my love with my family, caregivers and friends… as well as with the medical professionals.

RIz is a former Radio and Television Presenter. He was diagnosed with ALS, a type of Motor Neuron Disease (MND) in October 2018. Riz continues to contribute to the community in his own unique ways, especially in creating awareness for MND and ALS.

He was featured in Mediacorp’s CNA938 and has several articles in SPH’s Berita Harian most recently in February this year, sharing his experience using Assistive Technology to communicate. He was also invited to several motivational talks to share his experience.

An Interview by Sidney Kumar (The Create Don't Hate Podcast)

"I lost contact with Kok Peng after university but we remained FB friends throughout. It was only recently that i saw him post about his diagnosis and condition. What really inspired me was his positive mindset and perspective towards life. There is no cure for MND and ultimately all patients will require a caregiver as they lose most of their bodily function. " - Sidney Kumar (extracted by Spotify: The Create Don't Hate Podcast)